Dr Ariel Beresniak took part in the Ethics Prize Seminar in Stockholm in October 2016, where he discussed once again how inadequate, inaccurate and unethical the QALY approach is when used for making a decision about new medicines’ access to patients in need. 

This seminar was organised by the Swedish Council of Medical Ethics.

The full seminar broadcast can be viewed here. Dr Ariel Beresniak’s presentation starts at 1:50:13.

More information on the QALYs and DMI’s role in the ECHOUTCOME project: www.echoutcome.eu.

The European research project Electronic Health Records for Clinical Research (EHR4CR) was co-funded by the European Commission and the European Federation of Pharmaceutical Industries and Associations (EFPIA) under the Innovative Medicines Initiative. A new budgetary impact assessment published in the Journal of Health & Medical Informatics reveals that compared to current practices, the EHR4CR platform appears cost-saving for pharmaceutical industry, the primary sponsor of clinical trials.

The full article is available here.

More information on the EHR4CR project: www.ehr4cr.eu.

It is a well-known fact how music positively affects the intellectual development and improves the concentration. This relationship, appreciated by musicians and music fans is gradually gaining more attention also from the scientific research teams around the world. The scientific consortium ASSET, financed by the European Commission, proposes a unique way of integrating classical music in the promotion of public health by organising a piano concert where the classical piano pieces will be accompanied by the presentations of six international scientific experts.

“Concerto for Piano and Sciences” is the first event of this kind […]

The latest interview by Dr Ariel Beresniak is published on Celgene’s homepage and covers the topic of the flawed QALY approach.

The full discussion ‘Looking at the Big Picture in Health Care’ is available at Celgene’s homepage:

 http://www.celgene.com/looking-big-picture-health-care/

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Data Mining International will be participating in the symposium arranged by Pfizer during the next HTAi conference in Tokyo, in order to present the risks and inadequacies of the QALY approach used for resource allocations by several countries’ national health reimbursement systems. DMI will also discuss the scientifically more valid and robust alternatives to determine the cost-effectiveness of new medicines and technologies that can be confidently used in place of QALYs.

The information about the HTAi, 10-14 May 2016:

http://meeting.htai.org/events/tokyo2016/event-summary-4023afce0ec04ab387500e87f0a6a42d.aspx

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“Assessing the hair colouring’s impact on Quality of Life” – the recently published article describes how the internationally validated BeautyQoL -instrument can be used to assess the cosmetic products’ impact on Quality of Life and more particularly talks about the original study where two hair colour products were compared and demonstrated to have a positive effect.

The full article can be accessed through this link:

http://www.omicsonline.org/open-access/assessing-the-hair-colourings-impact-on-quality-of-life-jctt-1000103.php?aid=66127

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In the frame of the EHR4CR project*, a new article has been published in the Contemporary Clinical Trials on the Cost-Benefit Assessment of using EHR for clinical research when compared current practices. The full article can be downloaded for a limited time here: http://authors.elsevier.com/a/1S7v25WqQgX59b

Or from the home page of the journal: http://dx.doi.org/10.1016/j.cct.2015.11.011

* More on the IMI EHR4CR project : http://www.ehr4cr.eu

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“Cost-effectiveness modelling of percutaneous coronary interventions in stable coronary artery disease” – the article discusses the different approaches and compares their cost-effectiveness profiles in the patients suffering from stable coronary artery disease. The full article is available on the web site of the journal: http://www.wjgnet.com/1949-8462/full/v7/i10/594.htm.

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The BeautyQoL instrument designed specifically to measure the quality of life impacted by the cosmetic products and procedures as well as by the changes in the physical appearance, has been the subject of two recent publications:

• Quality of life assessment in cosmetics: specificity and interest of the international BeautyQol instrument.  J Cosmet Dermatol. 2015 Sep;14(3):260-5. doi: 10.1111/jocd.12156. Epub 2015 Jul 2.

• Impact of pigmentary disorders on quality of life in Japan: Interest of the BeautyQoL instrument. J Cosmet Laser Ther. 2015 Dec;17(6):313-7. doi: 10.3109/14764172.2015.1039034. Epub 2015 Jul 2.

More information on BeautyQoL can be […]

Data Mining International is a Partner of the first edition of the Summer School on Science in Society related issues on Pandemics in the frame of the European Commission funded project “ASSET” (http://www.asset-scienceinsociety.eu)

Date : Sep 21-24, 2015

Location: Rome (Italy)

Content:

• Governance of flu pandemics
• Unsolved scientific questions related to Pandemics and Epidemics
• Crisis participatory governance
• Ethical, legal and societal implications of pandemics
• Gender pattern – vulnerability
• Economic evaluation of response strategies
• Risk of intentionally caused outbreaks

More information is available on the “Summer School on Science in Society […]